Author Archive: BIOtechNOW Editor

Webinar Today: Comparative Effectiveness Research

lab_tech02

As we continue to see new strides in biopharmaceutical innovation, there is increasing value in having more information on how specific treatments affect patients.  This is the intention behind comparative effectiveness research, which can play a critical role in health care decision-making. Later today, experts will be examining the relationship between comparative effectiveness research and the way health care decisions may be made in the future.  The National Pharmaceutical Council (NPC) will be hosting a Read More >

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My Path From the BioGENEius Challenge to the White House Science Fair

BIO International Convention

My name is Natalie Ng, winner of the 2013 International BioGENEius Challenge, and I am excited and honored to be exhibiting at the 2015 White House Science Fair today. I can clearly remember the humble start of my extraordinary journey into scientific research. I was a first grader, attempting to build a geyser in my kitchen. Equipped with a one-liter bottle of club soda, clay, and an unstoppable willingness to try and try again, I Read More >

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Celebrating the Biomedical Achievements on World Down Syndrome Day

World Down Syndrome Day

Guest Post by Sara Hart Weir, MS, President, National Down Syndrome Society On March 21, we celebrate the 10th Annual World Down Syndrome Day.  It was established and eventually recognized by the United Nations as a means to raise awareness and mobilize support and recognition of the dignity, rights and well-being of people with Down syndrome across the world. Down syndrome is a condition in which a person is born with a third copy of chromosome 21, Read More >

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Biotech Could Miss a Multi-Billion Dollar Opportunity in Rare Disease

Give-RARE

Drug development is expensive.  Drug development is risky.  Drug development takes a long time. The key to changing this is leveraging the fact that no one is more motivated to eliminate rare disease than those who are directly affected by it. I know this because, as the founder of Give RARE, I have talked to parents of children with Tay Sachs disease who know their children will die within a few years unless something changes.  Read More >

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World Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe

Global-Genes

Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and help build awareness Global Genes, a leading patient advocacy organization with the mission to eliminate the challenges of rare disease, is inviting industry partners to support the eighth annual World Rare Disease Day. World Rare Disease Day is a day of advocacy to call attention to rare disease in the United States and around the globe. Created by European organization Read More >

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