Author Archive: BIOtechNOW Editor

More Than 90 Patient Organizations Urge Congress to Protect Patients and Innovation


Today, the Epilepsy Foundation and a diverse group of more than 90 advocacy organizations submitted a letter to the House and Senate Judiciary Committees urging Congress to maintain a strong and secure patent system that encourages investments in innovative treatments and devices as it considers comprehensive patent reform. Together, our organizations represent millions of individuals waiting for the next breakthrough treatment, and hopefully, cure. Without strong patents, many innovative ideas will not make it from the Read More >

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TSC Global Awareness Day


On May 15, the Tuberous Sclerosis Alliance (TS Alliance) will join tuberous sclerosis complex (TSC) organizations around the world to observe the fourth annual TSC Global Awareness Day.  On this day, thousands of individuals and families affected by TSC will join together to increase public awareness of the rare disease and share their stories of hope for the future. This year’s TSC Global Awareness Day will feature a social media campaign called #IAMTSC, which will Read More >

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April is Donate Life Month! Walk with the National Kidney Foundation on May 16!

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The need for organ donations continues to increase in America. Of the over 123,600 Americans on the national organ transplant waitlist, over 101,900 await a life-saving kidney. Many organ donors give the gift of life to a family member or friend with whom they are medically compatible. However, there are some truly special people who give simply because they can and the need is so great. Bill Singleton is one of those people. Singleton is Read More >

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Coalition Offers a Remedy for Stagnated Clinical Trials


Promising new clinical trial data offers fresh hope for the families of Alzheimer’s patients.  A new medication seems to be slowing the disease’s progress, limiting the cognitive decline that characterizes this “long goodbye.” Wouldn’t it be wonderful for patients suffering other diseases to have equally encouraging prospects? But many do not. Part of the problem lies with clinical trials.  For a new medication to receive FDA approval, it must undergo comprehensive testing on actual patients.  Read More >

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Webinar Today: Comparative Effectiveness Research


As we continue to see new strides in biopharmaceutical innovation, there is increasing value in having more information on how specific treatments affect patients.  This is the intention behind comparative effectiveness research, which can play a critical role in health care decision-making. Later today, experts will be examining the relationship between comparative effectiveness research and the way health care decisions may be made in the future.  The National Pharmaceutical Council (NPC) will be hosting a Read More >

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