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NIH Office of Science Policy Unveils New Resources

The NIH Office of Science Policy (OSP) works on a wide range of issues including …

March is National Colon Cancer Awareness Month

In 2000, President Clinton officially dedicated March as National Colon Cancer Awareness Month. Since then, …

Comparative Effectiveness Research Webinar

On Monday, March 14, the  (NPC) will host a webinar on the relationship between comparative …

A Patient’s Rare Cancer Mission

Like most people, Paul Poth had never heard the word cholangiocarcinoma. As a healthy 38 …

The Rare Disease Foundation as an Accelerator of Research

The Hereditary Neuropathy Foundation (HNF) was founded in 2001 by Allison Moore after she was …

Rare Disease Profile: Batten Disease

In 2007, we were living an ordinary life outside of Chicago.  We had three children: …

Making Green from Rhamnolipid-based Biosurfactants

People often ask me how Logos Technologies got into making biosurfactants for use in soaps, …

Climbing the Same Mountain: How Rare Disease Day Has Changed Our World

Rare Disease Day has a short history in the arena of national awareness events. It’s …

One Vision for Rare Diseases

Diagnosis Day a.k.a Ground Zero My son, Jonah, was diagnosed with Sanfilippo Syndrome type C …

Biosynthetic Technologies: Advancing a First-Commercial Renewable Chemical Project

The U.S. Department of Agriculture recently expanded its flagship “9003” loan guarantee program to include …