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How the Orphan Drug Tax Credit Leverages MDA’s Fight against Rare Genetic Diseases

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In the early 1950s, a small group of concerned parents, people with muscular dystrophy and their friends started a volunteer organization, the Muscular Dystrophy Association (MDA), to raise money for research into the causes of rare genetic diseases that mysteriously destroyed muscles and shortened lives. In the decades since — thanks to the support of a caring public and vital corporate partnerships — MDA has become a leading voluntary health agency, funding research in academic Read More >

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Amid Doping Scandals, Industry Must Remain Vigilant

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As doping in sport makes its way back into the news of the day, we must consider the consequences beyond undermining the integrity and honor of sports and competition. Doping undermines the integrity of our industry’s core mission of serving patients through drug discovery and development. Biologic products intended for use as medicines can enhance endurance, minimize recovery time, or promote muscle growth. The same medicines that can be used to help children with devastating Read More >

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How Do Patients Get Their Medicines During Hurricanes?

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Hurricane season has grown to last six months – running June through November. This means we are well into 2013′s hurricane season. Although the Eastern and Southern United States have seen their fair share of bad storms in the last few years, the most recent major hurricane to strike the U.S. was Hurricane Wilma in 2005. Surprisingly Hurricane Sandy in October of 2012 was not technically was not a hurricane, but a confluence of major Read More >

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When is the Evidence “Enough” to Make a Health Care Decision?

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At any given time, work is taking place in hundreds of laboratories throughout the country to develop new and better ways of combating disease and protecting our health and well-being.  As the results of this research becomes more widely known, how long does it take before this new information changes the actual practice of medicine in hospitals, clinics and physicians’ offices? According to the Institute of Medicine, it takes an average of 17 years for Read More >

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The Michael J. Fox Foundation Launches $10 Million Edmond J. Safra Core Programs

Moving Inside the Beltway: Brief Health Roundup

The Michael J. Fox Foundation for Parkinson’s Research (MJFF) has committed up to $10 million to its next funding round for the Edmond J. Safra Core Programs for PD Research to prioritize research toward transformative treatments and a cure for Parkinson’s disease (PD). We invite qualified researchers to apply to the Edmond J. Safra Core Programs for PD Research: Rapid Response Innovation Awards: This program supports high-risk, high-reward projects with little-to-no existing preliminary data, but with potential to significantly Read More >

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