Category Archives: Health

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Getting Ready for #RDD2015 (Rare Disease Day 2015)


Rare Disease Day is just around the corner on February 28th. R&D investment into rare disease research by venture capitalists was a major focus of BIO’s recent Venture Funding of Therapeutic Innovation between 2004-2013, available for download here. One of the more interesting findings in the study is the large increase of funding by venture capitalists for rare disease R&D over the past decade, as this chart illustrates: Over the last 10 years, there has Read More >

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Biotech Could Miss a Multi-Billion Dollar Opportunity in Rare Disease


Drug development is expensive.  Drug development is risky.  Drug development takes a long time. The key to changing this is leveraging the fact that no one is more motivated to eliminate rare disease than those who are directly affected by it. I know this because, as the founder of Give RARE, I have talked to parents of children with Tay Sachs disease who know their children will die within a few years unless something changes.  Read More >

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Op-Ed: As I Lay Dying

Former staff writer for the LA Times Laurie Becklund shares her experience ‘climbing ladders and falling down chutes’ as a metastatic breast cancer patient in this powerful op-ed. Becklund died in February, but left behind insights on how to improve the care and treatment of life-threatening diseases based on her first-hand experience. Becklund advocates for the creation of a ‘new system of data collection and an open, online, broad-range database about patient histories.’ This information Read More >

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World Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe


Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and help build awareness Global Genes, a leading patient advocacy organization with the mission to eliminate the challenges of rare disease, is inviting industry partners to support the eighth annual World Rare Disease Day. World Rare Disease Day is a day of advocacy to call attention to rare disease in the United States and around the globe. Created by European organization Read More >

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FOX Business: BIO CEO Jim Greenwood Discusses Future of Medicine


BIO President and CEO Jim Greenwood appeared on Fox Business during the 17th Annual BIO CEO & Investor Conference in New York City to discuss the future of medicine. Against a backdrop of policy discussions focused on how to encourage and incentivize innovation, this week’s conference hosted a record number of partnering meetings, as Greenwood emphasizes in the interview. Greenwood goes on to point out that investors closely follow policy trends, and their interest in Read More >

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