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Take Action: Sarcoma Awareness Month

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The pages on the calendar have quickly turned and July is again upon us.  For most, July means freedom from school, a summer vacation, or celebrating our nation’s independence.  But those of us in the sarcoma community know that this month means something else as well.  As we know, July is Sarcoma Awareness Month. Why do we have a Sarcoma Awareness Month?  Simply, sarcoma is still considered to be the “forgotten cancer.”  Our efforts to encourage Read More >

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Conference on Clinical Research for Rare Diseases on November 3rd

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BIO members may be interested in the upcoming Conference on Clinical Research for Rare Diseases, hosted by the Rare Diseases Clinical Research Network.  The Rare Diseases Clinical Research Network is an initiative of the Office of Rare Diseases Research, NCATS, funded through a collaboration between NCATS and the NIH.  The conference will be held on November 3, 2016 at the Washington Marriott Wardman Park. There are more than 6,800 diseases classified as “rare” (defined as Read More >

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8 Reasons New Medicines are Needed for Alzheimer’s

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Last week, the Alzheimer’s Association released an infographic with eight mythbusting facts to help dispel common misconceptions about the disease when it comes to prevention, financial impact, symptoms, and other areas. As the infographic confirms, there is no cure for this irreversible neurological disease, and only half of people living with Alzheimer’s (the 6th leading cause of death in the US) have actually been diagnosed. PhRMA’s report on Medicines in Development for Alzheimer’s Disease notes Read More >

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Bloomberg Caught Spreading Another Inaccurate “False Alarm” About Drug Prices

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I was deeply disturbed by Bloomberg’s inaccurate report this morning that attempted to examine drug costs. The article claims it “decodes [our industry’s]…pricing practices.” But, in reality, it does no such thing. It fails to take in the full picture of biopharmaceutical successes and failures; admits its “proof” is merely guesstimates from an organization that wasn’t involved in pricing decisions; and in some cases, it just plain gets the facts wrong. First, this article myopically Read More >

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ICYMI: Gov. Tom Ridge, Tara O’Toole on Investing in Bioscience to Protect Against Bioterror

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Writing in the Pittsburgh Post-Gazette last week, Governor Tom Ridge and Tara O’Toole remind us that dangerous diseases are emerging more and more frequently, and that investment in bioscience is critical to fight these drug-resistant infections. When we cannot or fail to halt this spread, they create epidemics. This summer, the world is struggling to contain the spread of the Zika virus. Last fall, it was Ebola. Before that, it was MERS, SARS, avian flu. Read More >

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