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BIO Patient & Health Advocacy Summit: The Power of Partnerships

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This week, the BIO Patient & Health Advocacy Summit powered partnerships in the industry to advance drug discovery by bringing together patient advocacy organizations, government agencies and industry leaders to discuss how to accelerate R&D, preserve patient access, leverage data and build collaborations focused on empowering patients. The rallying cry that reverberated throughout the event and over Twitter seemed clear from the beginning and Paul Hastings, Chairman and CEO of OncoMed Pharmaceuticals, Inc. captured it Read More >

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Richard Pops: A Greater Patient Voice in Drug Development

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In the October issue of MedNous, Alkermes’ CEO Richard Pops writes about the move toward increased engagement with patients in the development, review and delivery of new medicines, as well as the challenges and opportunities associated with access and reimbursement. Pops asserts that patients must organize to share data that can be used in regulatory decision-making. Furthermore, he writes that this input must be integrated through the process – from the early stages of development Read More >

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Forbes profiles a medical miracle and the value of cures

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This week, Forbes’ Matthew Herper wrote a moving story about a girl who is a medical miracle at only 5-years-old. When Evie Elsaesser was born, she was only expected to live a few hours as her bones were soft and un-calcified. Shortly afterwards, Evie was enrolled in a clinical trial for a drug that replaced the bone-forming enzyme that she was missing. While she suffered from side effects and endured a long road to being Read More >

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Ebola Highlights Importance of Vaccine Development in Protecting Global Health

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The current Ebola crisis shows how government regulators and research institutions, global health organizations, and biopharmaceutical research companies can work collaboratively and efficiently to speed the development of novel vaccines and therapeutics in response to an urgent global health problem. Yet just as importantly, it underscores the need to move innovation forward before a crisis breaks out in order to prevent illness and suffering, and save the lives of countless people around the world. Vaccines Read More >

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Kenneth Thorpe: America Subsidizes Medical Innovation for World

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Kenneth Thorpe, chairman of the Partnership to Fight Chronic Disease and a former deputy assistant secretary for Health Policy at HHS, wrote a post for The Hill this week pointing out what is left unstated in many current discussions about the price of innovative medicines and treatments: other nations aren’t paying their fair share for medical advancements, driving up the costs here at home: Patients throughout the globe benefit from the pharmaceuticals, medical devices and Read More >

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