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Judd Gregg: Biodefense Funding Is Crucial to National Security

Writing in the Morning Consult, former Senator Judd Gregg explains critical role of federal programs …

JAMA Study Finds Vast Majority of Requests for Clinical Trial Data Granted

In 2014, BIO members reaffirmed and broadened their commitment to responsibly share data from clinical …

ICYMI: John Lechleiter: An Empty Obama-Clinton-Sanders Plan on Drug Costs

Writing in the Wall Street Journal today, Eli Lilly and Company Chairman, President and CEO …

March is National Colon Cancer Awareness Month

In 2000, President Clinton officially dedicated March as National Colon Cancer Awareness Month. Since then, …

Comparative Effectiveness Research Webinar

On Monday, March 14, the  (NPC) will host a webinar on the relationship between comparative …

2016 Rare Disease Day at NIH: "Patients and Researchers - Partners for Life"

Rare Disease Day was established in 2008 in order to raise public awareness globally for …

A Patient’s Rare Cancer Mission

Like most people, Paul Poth had never heard the word cholangiocarcinoma. As a healthy 38 …

The Rare Disease Foundation as an Accelerator of Research

The Hereditary Neuropathy Foundation (HNF) was founded in 2001 by Allison Moore after she was …

Rare Disease Profile: Batten Disease

In 2007, we were living an ordinary life outside of Chicago.  We had three children: …

Climbing the Same Mountain: How Rare Disease Day Has Changed Our World

Rare Disease Day has a short history in the arena of national awareness events. It’s …