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Biotech Could Miss a Multi-Billion Dollar Opportunity in Rare Disease


Drug development is expensive.  Drug development is risky.  Drug development takes a long time. The key to changing this is leveraging the fact that no one is more motivated to eliminate rare disease than those who are directly affected by it. I know this because, as the founder of Give RARE, I have talked to parents of children with Tay Sachs disease who know their children will die within a few years unless something changes.  Read More >

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Op-Ed: As I Lay Dying

Former staff writer for the LA Times Laurie Becklund shares her experience ‘climbing ladders and falling down chutes’ as a metastatic breast cancer patient in this powerful op-ed. Becklund died in February, but left behind insights on how to improve the care and treatment of life-threatening diseases based on her first-hand experience. Becklund advocates for the creation of a ‘new system of data collection and an open, online, broad-range database about patient histories.’ This information Read More >

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World Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe


Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and help build awareness Global Genes, a leading patient advocacy organization with the mission to eliminate the challenges of rare disease, is inviting industry partners to support the eighth annual World Rare Disease Day. World Rare Disease Day is a day of advocacy to call attention to rare disease in the United States and around the globe. Created by European organization Read More >

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FOX Business: BIO CEO Jim Greenwood Discusses Future of Medicine


BIO President and CEO Jim Greenwood appeared on Fox Business during the 17th Annual BIO CEO & Investor Conference in New York City to discuss the future of medicine. Against a backdrop of policy discussions focused on how to encourage and incentivize innovation, this week’s conference hosted a record number of partnering meetings, as Greenwood emphasizes in the interview. Greenwood goes on to point out that investors closely follow policy trends, and their interest in Read More >

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Producing “21st Century Cures” – 2015 U.S. Legislative Outlook with Chairman Upton and Rep. DeGette

21st Century Cures Act

BIO President & CEO Jim Greenwood today sat down with Energy & Commerce Committee Chairman Fred Upton (R-MI) and Congresswoman Diana DeGette (D-CO) for a lively and in-depth discussion of the 21st Century Cures Initiative, a comprehensive effort to accelerate the discovery, development and delivery of new drugs and therapies. The conversation was a great way to kick off the opening plenary of the 17th BIO CEO & Investor Conference. This year’s conference, as Greenwood noted, has a Read More >

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