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Rare Disease Profile: Batten Disease

In 2007, we were living an ordinary life outside of Chicago.  We had three children: …

Climbing the Same Mountain: How Rare Disease Day Has Changed Our World

Rare Disease Day has a short history in the arena of national awareness events. It’s …

Reality Check for AARP

This morning, AARP released yet another misleading report on prescription drug prices that ignores key …

One Vision for Rare Diseases

Diagnosis Day a.k.a Ground Zero My son, Jonah, was diagnosed with Sanfilippo Syndrome type C …

Orphan Drug Tax Credit is Crucial to Rare Disease R&D

The term “rare disease” may be misleading: to be “rare” a disease must effect fewer …

Sara Radcliffe: Legislature Shouldn't Put Hurdles in Way of Cancer Treatments

Check out California Life Sciences Association (CLSA) president and chief executive officer Sara Radcliffe’s op-ed …

ICYMI: Rep. Hatch Slams Possible Obama Move on Drug Prices

In a hearing held on Thursday to review the Department of Health and Human Services …

#BIOCEO16 Fireside Chat with Senator Chuck Schumer

New York Senator Chuck Schumer joined attendees at the 2016 BIO CEO & Investor Conference …

WSJ: “You can’t make medical progress by punishing medical advances.”

Check out today’s Wall Street Journal Editorial, highlighting why you can’t make medical progress by …

Tomorrow: From Volume to Value: Designing a Patient-Centered Healthcare System (Webcast)

Tomorrow at the Newseum, The Hill will be hosting a live discussion about the transition …