Category Archives: Health

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Patients are the Missing Link in R&D

Elias Zerhouni

An architect does not wait until construction begins to show clients a blueprint. Neither does a caterer prepare a banquet meal without consulting first with the host. In biopharmaceutical science, however, for too long we have developed medicines without engaging patients early on and throughout the process. If scientific innovation is to truly be innovative, we need to be more interested in the people our products will help. We need to rethink innovation. The model we’ve used in healthcare Read More >

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Evidence, Coverage, & Incentives: A PMC/BIO Solutions Summit Conference

Amy Miller Photo

Personalized medicine is changing the way medicine is practiced, and how drugs and biologics are developed. Systemic changes are needed to reflect this and support product development, but current economic, regulatory, and practice disincentives are impacting and slowing development. For example, medical advances often take years to be recognized in clinical care guidelines and cost containment policies often prevent new diagnostics from being priced at a level that supports innovation. The Personalized Medicine Coalition (PMC) and Read More >

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Psoriasis Patients Flock to Social Media for Practical Info

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About eight in 10 psoriasis patients who use health care social networks say they do so primarily to learn how others manage their disease, and get practical tips and advice they couldn’t find elsewhere, according to a survey conducted by the National Psoriasis Foundation, Manhattan Research and Inspire, a company that builds and manages online patient communities. The millions of people with psoriasis, including the one million visitors to TalkPsoriasis in 2012, are not alone Read More >

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The Michael J. Fox Foundation Launches New Funding Opportunities

Parkinson's Disease

The Michael J. Fox Foundation (MJFF) is committed to sharing the risk of drug development with researchers from academia and industry alike in order to keep promising research moving forward along the Parkinson’s disease (PD) drug pipeline. To date, MJFF has funded over $300 million in research, $83 million of which has been awarded to more than 180 unique, industry-led projects. On February 20, MJFF launched nine funding programs, three of which are new to Read More >

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Rare Disease Day: Families and Advocacy Groups Drive Treatments for Rare Diseases

Gavin and Bella Today, we celebrate Rare Disease Day to recognize the path to treatments and cures is paved by families and caregivers working with advocacy groups, medical advisors, and dedicated researchers. Of the many people touched by and involved in the world of rare diseases, patients and their families are inarguably the most passionate advocates for rare disease research. When their disease-focused family foundations work together, pool their funds, and align their efforts, the results can be Read More >
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