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ALS Awareness Month: 10 Things You Should Know About ALS

Steve Perrin

By Steve Perrin, Ph.D., Chief Executive Officer and CSO, ALS Therapy Development Institute May is a month full of many exciting and celebratory days: college graduations, Mother’s day and Memorial Day.  It is a month typified by excitement, renewal, anticipation and remembrance.  It is also the month in the United States where we recognize all those living with ALS, commonly known as Lou Gehrig’s disease.  If you don’t know someone already living with this currently Read More >

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People With Rare Diseases Face a Host of Unique Challenges

Dennis Jackman

By Dennis Jackman, Senior Vice President, Public Affairs, CSL Behring People with rare and serious medical disorders encounter a host of unique challenges–from obtaining a correct diagnosis, to identifying an appropriate course of treatment and gaining affordable access to the care they need.  They and their families, caretakers and health care providers face a constant struggle to identify and access available resources, away from the attention of traditional media that focuses on more common disorders Read More >

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May is Celiac Disease Awareness Month

Dr. Green

Celiac disease is one of the most common autoimmune conditions in the U.S. but frequently goes undiagnosed.  The cause is currently unknown and it can develop at any point in life.  People who have a relative with the disease are more likely to develop it, and women are more likely than men to have it. When people with celiac disease eat food with gluten, their immune system reacts by damaging areas of the lining of Read More >

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Biosimilars Ahead, Proceed with Caution

Richard Dolinar

By Richard M. Dolinar, M.D., Chairman, Alliance for Safe Biologic Medicines In today’s budget-constrained world, the goal for health care is not only to save lives but also to save money. On Friday, May 11, the Food and Drug Administration (FDA) will hold a one-day public hearing on important medicines, known as biosimilars, that are under FDA consideration to come to the United States (U.S.) and offer the opportunity to help achieve the second prong Read More >

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Help Children and Adults with Brittle Bones During OI Awareness Week

Mallie

By Stuart Tart, Director of Development, Osteogenesis Imperfecta Foundation Ten years ago, Greg and wife Leigh brought their new daughter, Mallie, home from the hospital. When she was 9 days old, Mallie was fussy, leading Greg and Leigh to discover that their baby girl had fractured her right tibia and fibula.  The new parents immediately took their daughter to the doctor, who advised them to take Mallie straight to the emergency room. They discovered that Read More >

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