Latest From Biotech Now

New PhRMA Report: A Decade of Innovation in Rare Diseases

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Today, the Pharmaceutical Research and Manufacturers of America (PhRMA) released “A Decade of Innovation in Rare Diseases,” which highlights 10 years of progress in understanding rare diseases and drug development resulting in groundbreaking therapies. According to the report, more than 230 new medicines to treat rare or “orphan” diseases were approved by the U.S. Food and Drug Administration (FDA) in the last decade, and there are currently more than 450 orphan drugs in development. The Read More >

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The Administration Focuses on Improving Food Safety

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The Obama administration wants to establish a new agency that would be housed within the Department of Health and Human Services and serve as the primary voice on food safety standards and compliance with those standards. The Agency would be named the Food Safety Administration, the Obama administration said in its new budget request. The New York Times covered the story here: …At least 15 government agencies — from the Environmental Protection Agency to the National Oceanic and Atmospheric Administration — have Read More >

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BIO IPCC Spring Conference Program Announced

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BIO’s 2015 IP Counsels Committee Spring Conference & Meeting will be held April 15-17 in St. Louis, Missouri, at the Four Seasons St. Louis Hotel. The biannual conference offers timely, relevant educational sessions on the latest issues in the biotech IP sector, informal networking events designed to promote discussion and foster relationships among industry colleagues, and practical tips for attendees to use the next day. Attendees will hear from the foremost experts in biotech IP Read More >

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Getting Ready for #RDD2015 (Rare Disease Day 2015)

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Rare Disease Day is just around the corner on February 28th. R&D investment into rare disease research by venture capitalists was a major focus of BIO’s recent Venture Funding of Therapeutic Innovation between 2004-2013, available for download here. One of the more interesting findings in the study is the large increase of funding by venture capitalists for rare disease R&D over the past decade, as this chart illustrates: Over the last 10 years, there has Read More >

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Biotech Could Miss a Multi-Billion Dollar Opportunity in Rare Disease

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Drug development is expensive.  Drug development is risky.  Drug development takes a long time. The key to changing this is leveraging the fact that no one is more motivated to eliminate rare disease than those who are directly affected by it. I know this because, as the founder of Give RARE, I have talked to parents of children with Tay Sachs disease who know their children will die within a few years unless something changes.  Read More >

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