Tag Archives: Ernst & Young

The Washington Post Unfairly Attacks The Orphan Drug Act

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The Orphan Drug Act has been a tremendous success and addressed a market failure by providing incentives to bring new treatments to those suffering with rare diseases. That’s why I was deeply troubled by Friday’s unfair article in The Washington Post targeting the Orphan Drug Act through selective and unsubstantiated attacks that seem designed to undermine this bipartisan and hugely successful regime that has helped so many patients with rare diseases live longer and healthier Read More >

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Orphan Drug Tax Credit is Crucial to Rare Disease R&D

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The term “rare disease” may be misleading: to be “rare” a disease must effect fewer than 200,000 people in the U.S., but there are over 7,000 rare diseases that have been identified. Taken together, that means that nearly 30 million Americans suffer from a rare disease or condition.  While innovative therapies have been developed for a variety of these diseases—including Sickle Cell Anemia, Gaucher Disease, and Huntington Disease—too many patients still lack treatment options. Developing Read More >

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Complexities of Rare Diseases Take the Spotlight at BIO

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Global Genes Founder & CEO Nicole Boice opened the BIO 2015 Orphan & Rare Disease Track by addressing a packed session with a simple, powerful statement: “We’re all working to eliminate the challenges of rare diseases, but patients and their advocates aren’t always equipped to fight.” Organizations like Global Genes help families affected by rare disease by connecting them with much needed tools and resources. By better understanding the definition of a “rare” disease, industry Read More >

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E&Y Study: 3 Tax Tweaks that Could Spur Job Growth

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A new report from Ernst & Young illustrates the economic impact of three tax proposals intended to help small businesses spur innovative research and development. The report indicates that the three tax revisions, if enacted together, could drive up research and development investments by more than $20 billion and create an estimated 623,000 new jobs at new and small firms. The report outlines the potential impact of the three proposals, which include: The R&D partnership Read More >

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CSBI: New Study Outlines Potential Impact of Three Promising Tax Proposals

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Ernst & Young recently released a study to determine the potential impact of three tax proposals to help innovative small companies secure sustained private investment. The study models the direct, indirect, and induced impact that the three legislative proposals would have on investment and employment in small, R&D-intensive companies. Below is a summary of the proposals, as well as the potential impact if enacted: Proposal 1:  Section 469 R&D Partnership Structures. Reforming the passive activity Read More >

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