Tag Archives: health

Raising Awareness of Type 1 Diabetes

Diabetes-Awareness

November is Diabetes Awareness Month. So many people have heard of diabetes, but yet so few really understand the disease. So this month the Juvenile Diabetes Research Foundation (JDRF) and the American Diabetes Association (ADA), two advocacy organizations for people with diabetes, are sharing stories (and raising awareness) to help people better understand this complicated disease. Five years ago my daughter Eva was diagnosed with Type 1 diabetes, which is a very different form of Read More >

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Charcot-Marie-Tooth Association: Success Factors Driving Industry-Patient Group Partnerships

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At this year’s BIO Patient & Health Advocacy Summit, a major theme was the power of partnerships between patient advocacy groups and other stakeholders including industry, government, and academia. One patient group which has been very successful at creating and leveraging partnerships to advance the drug development process is the Charcot-Marie-Tooth Association (CMTA), a group representing patients with Charcot-Marie-Tooth (CMT) disease. CMT is the most common hereditary motor and sensory neuropathy, affecting about 150,000 patients Read More >

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Flu Season: Get Vaccinated Now to Ensure Protection

Vaccination

With flu season – and holiday travel – just around the corner, right now is a good time to get an annual flu vaccine (whether you opt for a shot or the nasal spray), which is the best way to prevent yourself from becoming infected with the flu. Flu season in America most commonly peaks between December and January. It typically takes about two weeks after you are vaccinated for protective antibodies to build up Read More >

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Shining A Light on Lung Cancer

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Lung cancer is the leading cause of cancer death in the US, taking the lives of twice as many women as breast cancer and three times as many men as prostate cancer. While a history of smoking is the main risk factor for developing lung cancer, nearly 80% of those diagnosed today were never smokers or are former smokers who quit decades ago. November is Lung Cancer Awareness Month, a time of reflection for advocates Read More >

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Milwaukee Journal Sentinel Story on Use of Surrogate Measures

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Earlier this week, John Fauber of the Milwaukee Journal Sentinel wrote an article on measures used to determine whether new medicines for serious and life-threatening diseases should reach patients. Fauber seem(s) to suggest that the use of surrogate measures – such as tumor shrinkage – do not provide evidence of drug efficacy. The story fails to present a balanced view of the complex benefit-risk assessments that the FDA must carefully consider when reviewing applications for Read More >

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