Tag Archives: health

More Than 90 Patient Organizations Urge Congress to Protect Patients and Innovation

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Today, the Epilepsy Foundation and a diverse group of more than 90 advocacy organizations submitted a letter to the House and Senate Judiciary Committees urging Congress to maintain a strong and secure patent system that encourages investments in innovative treatments and devices as it considers comprehensive patent reform. Together, our organizations represent millions of individuals waiting for the next breakthrough treatment, and hopefully, cure. Without strong patents, many innovative ideas will not make it from the Read More >

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BIO Applauds Energy and Commerce Health Subcommittee for Approving 21st Century Cures Act

21st Century Cures Act

Today, the Biotechnology Industry Organization (BIO) praises the Energy and Commerce Health Subcommittee for approving and forwarding to the full Committee the 21st Century Cures Act. We applaud the Energy and Commerce Committee for recognizing the critical link between research, development, and reimbursement. We look forward to continuing to work with Chairman Fred Upton (R-MI), Congresswoman Diana DeGette (D-CO), and members of the Energy and Commerce Committee to help expedite the delivery of the next Read More >

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TSC Global Awareness Day

TSC

On May 15, the Tuberous Sclerosis Alliance (TS Alliance) will join tuberous sclerosis complex (TSC) organizations around the world to observe the fourth annual TSC Global Awareness Day.  On this day, thousands of individuals and families affected by TSC will join together to increase public awareness of the rare disease and share their stories of hope for the future. This year’s TSC Global Awareness Day will feature a social media campaign called #IAMTSC, which will Read More >

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Tick Size Pilot Program: A Few Pennies Make a Big Difference

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Earlier this week, the Securities and Exchange Commission (SEC) approved a tick size pilot program that will begin next year. We issued this statement, praising the SEC for finalizing this program, which could improve liquidity and enhance capital formation for emerging biotech companies. Under current SEC rules, all securities on the public market are priced in $0.01 increments known as “tick sizes.” The switch to the standard tick size of a penny was enacted in 2000 Read More >

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United Health To Congress: Let Cancer Patients Eat Gauze (Op-Ed in The Hill)

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Jonathan Wilcox’s op-ed in The Hill today highlights the growing challenge of insurance company tactics that contribute to increased costs to the health care system and restricted patient access to life-saving medicines. While UnitedHealth Group just reported increased revenues for first quarter 2015, patients are shouldering the burden with rising copays and restricted coverage, asserts the author. As Wilcox writes, ‘That’s why cancer advocacy organizations are taking action, pressing Congress and state legislatures to cap co-pays on specialty Read More >

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