Tag Archives: health

Lupus Awareness Month: Help Us Solve The Cruel Mystery

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Lupus is an unpredictable and misunderstood autoimmune disease that is difficult to diagnose, hard to live with and a challenge to treat. Lupus ravages different parts of the body, causing inflammation and tissue damage to virtually any organ system, including skin, joints, heart, lungs, kidney and brain. There is only one drug designed specifically approved to treat lupus, although there are other treatments that are commonly prescribed off-label and several potential new treatments in development Read More >

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Igniting the Tipping Point between Digital Health and Pharma

Jill-Gilbert

In 2016, the digital transformation in healthcare is poised to shift from a silently rising tide to a tumultuous, crashing wave. (The sound of innovation will be especially audible June 6 and 7 at BIO 2016 in San Francisco.) A survey last year by the trend-watchers at Russell Reynolds Associates found that 47 percent of healthcare executives thought that their business would be “moderately or massively disrupted by digital in the next 12 months.” If Read More >

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Climbing the Same Mountain: How Rare Disease Day Has Changed Our World

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Rare Disease Day has a short history in the arena of national awareness events. It’s only been celebrated since 2008 in Europe and 2009 in the United States and if you check most web calendars of national awareness months/weeks/days, unfortunately you will not find Rare Disease Day listed. Is it correct to say that Rare Disease Day has changed our world? How is that possible in just eight short years? What is it about Rare Read More >

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Orphan Drug Tax Credit is Crucial to Rare Disease R&D

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The term “rare disease” may be misleading: to be “rare” a disease must effect fewer than 200,000 people in the U.S., but there are over 7,000 rare diseases that have been identified. Taken together, that means that nearly 30 million Americans suffer from a rare disease or condition.  While innovative therapies have been developed for a variety of these diseases—including Sickle Cell Anemia, Gaucher Disease, and Huntington Disease—too many patients still lack treatment options. Developing Read More >

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Family Caregiving is Global, Not Local

IACO

We often think of family caregiving as a local issue. As policymakers in the U.S. continue to put pressure on the healthcare and long-term care systems to cut costs, many believe that caring for an aging or disabled loved one is a personal issue. We ask the family caregiver to take on assistance with daily activities, medical and nursing tasks, financial management, and care coordination. Supports, where available, are typically provided through individual health plans, Read More >

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