Tag Archives: Health Care

New PhRMA Report: A Decade of Innovation in Rare Diseases

patient

Today, the Pharmaceutical Research and Manufacturers of America (PhRMA) released “A Decade of Innovation in Rare Diseases,” which highlights 10 years of progress in understanding rare diseases and drug development resulting in groundbreaking therapies. According to the report, more than 230 new medicines to treat rare or “orphan” diseases were approved by the U.S. Food and Drug Administration (FDA) in the last decade, and there are currently more than 450 orphan drugs in development. The Read More >

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Biotech Could Miss a Multi-Billion Dollar Opportunity in Rare Disease

Give-RARE

Drug development is expensive.  Drug development is risky.  Drug development takes a long time. The key to changing this is leveraging the fact that no one is more motivated to eliminate rare disease than those who are directly affected by it. I know this because, as the founder of Give RARE, I have talked to parents of children with Tay Sachs disease who know their children will die within a few years unless something changes.  Read More >

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World Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe

Global-Genes

Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and help build awareness Global Genes, a leading patient advocacy organization with the mission to eliminate the challenges of rare disease, is inviting industry partners to support the eighth annual World Rare Disease Day. World Rare Disease Day is a day of advocacy to call attention to rare disease in the United States and around the globe. Created by European organization Read More >

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Patients Remain the Focus for the Future of Personalizing Oncology

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The 17th Annual BIO CEO & Investor Conference, being held at the Waldorf Astoria in New York City, kicked off this morning with an interactive panel of industry heavyweights discussing the growing trend to personalize oncology treatments with molecular diagnostics. Moderated by Michael King, Managing Director, Senior Research Analyst, JMP Securities. Michael helped steer the group of experts as they discussed enabling broader matching of patient-cancer-therapy, lessons learned from the Cancer Genome Atlas and the potential Read More >

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National Black HIV/AIDS Awareness Day

National Black HIV/AIDS Awareness Day

In the United States, more than one million people are infected with HIV, with an estimated 50,000 newly diagnosed each year. While African Americans make up only 12-14 percent of the U.S. population they account for nearly half (44 percent) of all the new HIV infections in the U.S. (CDC). Today, as the United States observes National Black HIV/AIDS Awareness Day, we’d like to take a look at some of the scientific advancements made in Read More >

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