Tag Archives: Health Care

United Health To Congress: Let Cancer Patients Eat Gauze (Op-Ed in The Hill)

Patient

Jonathan Wilcox’s op-ed in The Hill today highlights the growing challenge of insurance company tactics that contribute to increased costs to the health care system and restricted patient access to life-saving medicines. While UnitedHealth Group just reported increased revenues for first quarter 2015, patients are shouldering the burden with rising copays and restricted coverage, asserts the author. As Wilcox writes, ‘That’s why cancer advocacy organizations are taking action, pressing Congress and state legislatures to cap co-pays on specialty Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , , , , ,

Coalition Offers a Remedy for Stagnated Clinical Trials

lab_tech

Promising new clinical trial data offers fresh hope for the families of Alzheimer’s patients.  A new medication seems to be slowing the disease’s progress, limiting the cognitive decline that characterizes this “long goodbye.” Wouldn’t it be wonderful for patients suffering other diseases to have equally encouraging prospects? But many do not. Part of the problem lies with clinical trials.  For a new medication to receive FDA approval, it must undergo comprehensive testing on actual patients.  Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , , , , , , ,

Webinar Today: Comparative Effectiveness Research

lab_tech02

As we continue to see new strides in biopharmaceutical innovation, there is increasing value in having more information on how specific treatments affect patients.  This is the intention behind comparative effectiveness research, which can play a critical role in health care decision-making. Later today, experts will be examining the relationship between comparative effectiveness research and the way health care decisions may be made in the future.  The National Pharmaceutical Council (NPC) will be hosting a Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , , , , , ,

New PhRMA Report: A Decade of Innovation in Rare Diseases

patient

Today, the Pharmaceutical Research and Manufacturers of America (PhRMA) released “A Decade of Innovation in Rare Diseases,” which highlights 10 years of progress in understanding rare diseases and drug development resulting in groundbreaking therapies. According to the report, more than 230 new medicines to treat rare or “orphan” diseases were approved by the U.S. Food and Drug Administration (FDA) in the last decade, and there are currently more than 450 orphan drugs in development. The Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , , , , , , ,

Biotech Could Miss a Multi-Billion Dollar Opportunity in Rare Disease

Give-RARE

Drug development is expensive.  Drug development is risky.  Drug development takes a long time. The key to changing this is leveraging the fact that no one is more motivated to eliminate rare disease than those who are directly affected by it. I know this because, as the founder of Give RARE, I have talked to parents of children with Tay Sachs disease who know their children will die within a few years unless something changes.  Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , , , , ,