Tag Archives: healthcare

Coalition Offers a Remedy for Stagnated Clinical Trials

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Promising new clinical trial data offers fresh hope for the families of Alzheimer’s patients.  A new medication seems to be slowing the disease’s progress, limiting the cognitive decline that characterizes this “long goodbye.” Wouldn’t it be wonderful for patients suffering other diseases to have equally encouraging prospects? But many do not. Part of the problem lies with clinical trials.  For a new medication to receive FDA approval, it must undergo comprehensive testing on actual patients.  Read More >

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Webinar Today: Comparative Effectiveness Research

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As we continue to see new strides in biopharmaceutical innovation, there is increasing value in having more information on how specific treatments affect patients.  This is the intention behind comparative effectiveness research, which can play a critical role in health care decision-making. Later today, experts will be examining the relationship between comparative effectiveness research and the way health care decisions may be made in the future.  The National Pharmaceutical Council (NPC) will be hosting a Read More >

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New PhRMA Report: A Decade of Innovation in Rare Diseases

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Today, the Pharmaceutical Research and Manufacturers of America (PhRMA) released “A Decade of Innovation in Rare Diseases,” which highlights 10 years of progress in understanding rare diseases and drug development resulting in groundbreaking therapies. According to the report, more than 230 new medicines to treat rare or “orphan” diseases were approved by the U.S. Food and Drug Administration (FDA) in the last decade, and there are currently more than 450 orphan drugs in development. The Read More >

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Biotech Could Miss a Multi-Billion Dollar Opportunity in Rare Disease

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Drug development is expensive.  Drug development is risky.  Drug development takes a long time. The key to changing this is leveraging the fact that no one is more motivated to eliminate rare disease than those who are directly affected by it. I know this because, as the founder of Give RARE, I have talked to parents of children with Tay Sachs disease who know their children will die within a few years unless something changes.  Read More >

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World Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe

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Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and help build awareness Global Genes, a leading patient advocacy organization with the mission to eliminate the challenges of rare disease, is inviting industry partners to support the eighth annual World Rare Disease Day. World Rare Disease Day is a day of advocacy to call attention to rare disease in the United States and around the globe. Created by European organization Read More >

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