Tag Archives: healthcare

Mito What???

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Mitochondrial Disease: The Most Common Disease You’ve Probably Never Heard of… About 20 years ago, mitochondrial disease was virtually unheard of.  Just 10 years ago, it was considered rare. Today, according to NORD, a disease is considered rare when less than 200,000 people are affected.  Mitochondrial disease is not a single disease, but rather an entire umbrella of rare diseases.  For example, Alpers disease and Barth syndrome are very different and rare forms of mitochondrial Read More >

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What to Watch: Vaccines – Calling the Shots

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Recently, PBS’s NOVA had an episode on the reemergence of diseases (including measles, whooping cough, and mumps) that had previously been largely eradicated in the US by vaccines, in part because nervous parents are skipping their children’s shots. At least ten percent of parents delay or skip some recommended vaccines, and one percent don’t vaccinate at all. What’s driving people away, and what are the consequences? Those are the questions explored in Vaccines — Calling Read More >

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CNN: Sandy’s Story

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CNN launched a new series profiling Sandy Halperin, a dentist and Harvard assistant professor, to raise awareness for the devastating impact of Alzheimer’s disease on a patient and his family. Producer Stephanie Smith describes Sandy’s Story as ‘an unprecedented look at the cruel journey of a vibrant, once healthy man as he gradually loses his memory.’ Halperin was diagnosed with early stage Alzheimer’s disease at age 60. The in-depth package explores the day-to-day reality of Read More >

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Patients Suffering from Gaucher’s Disease Deserve Better

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Gaucher Disease is one of the over 6,000 rare diseases that affect patients worldwide, representing a frontier of unmet medical need [NCATS, NIH]. The challenges for drug development generally—long and costly research and development timelines—are exacerbated by the inherently small patient populations affected by rare diseases. These patients can be difficult to identify and geographically dispersed and their clinical presentation can be quite disparate, complicating the design and recruitment for clinical trials used to determine Read More >

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NYT Columnist: Insurance Industry “Looking at the Costs of Sovaldi in the Wrong Way”

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Margot Sanger-Katz’s article on a new drug that treats hepatitis C notes that despite the attention the cost has received to date, those attacking the drug are “looking at the costs of Sovaldi in the wrong way.” Sanger-Katz acknowledges that these one-time treatments can be a ‘shock to the system,’ but notes the value far outweighs the expense since it cures the disease in the majority of patients, preventing further costly treatments and care. Sanger-Katz Read More >

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