Tag Archives: healthcare

The International Myeloma Foundation Pioneers Myeloma Awareness Month

MAM-Banner-2014-115x76

Years ago, after much frustration over the lack of understanding and awareness of multiple myeloma, the International Myeloma Foundation (IMF) declared March as “Myeloma Awareness Month” and has grown its program into a multifaceted campaign. This year’s program included a kickoff live event, free teleconference, new website, social media, local proclamations, and “Myeloma Awareness Month” kits for the more than 150 IMF support groups across the country. At the start of the month, IMF launched Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , , , , , , , , ,

Washington Post: Crowdsourcing Medical Decisions

clinical-trial-article-115x76

On Monday, Ariana Eunjung Cha wrote about the difficult ethical issue of Compassionate Use, which allows a patient access to an unapproved treatment when others with similar requests are denied access. Arthur Caplan, director of the division of medical ethics at New York University’s Langone Medical Center, describes it as a moral dilemma that could not be ‘more troubling and impossible-to-resolve’. In the article, Caplan asserts that ‘it’s best for the company to focus on getting the Read More >

Health  |  1 Comment  |  Email This Post
Tags: , , , , , ,

AIR 340B: New Analysis Shows Most 340B Hospitals Provide Little Charity Care

95468934

Today, the Alliance for Integrity and Reform of 340B (AIR 340B) released a new report, showing that a substantial portion of hospitals enrolled in the 340B drug discount program provide only the barest amount of charity care, and as such they are not fulfilling Congress’ expectations about the program. Congress created the program in 1992 to help uninsured indigent patients gain better access to prescription medicines. The original intention of the program was to provide Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , , , , , , ,

Promising News for Babies Born HIV-Positive

kids

This week, scientists announced that they have cleared HIV in a Long Beach, Calif.-baby who doctors confirmed was infected with the virus at the time of birth. Last year, doctors reported that a baby in Mississippi had been cleared of the virus after receiving aggressive drug treatment 30 hours after birth. The most recent announcement is particularly significant because the latest baby was confirmed to have the virus and doctors immediately started the baby on Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , , , , ,

Rare Disease Day 2014: Joining Together for Better Care

Hans Schikan of Prosensa

There are more than 6,000 different rare diseases affecting over 60 million people across Europe and North America, alone, and millions more throughout the world. Most of these diseases are genetic, serious, chronic and debilitating. Each disease is different, but they affect people in similar ways. Joining together can help patients and their families find common solutions for care and remind them they are not alone. As the world marks Rare Disease Day on February Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , , , , , , , , , , , , ,