Tag Archives: healthcare

Dr. Eric Topol to Keynote Wednesday Luncheon at #BIO2015

Dr. Eric Topol

This week, we are very excited to announce that Dr. Eric J. Topol, director of the Scripps Translational Science Institute, will be joining us as a luncheon at this year’s BIO International Convention in Philadelphia. Dr. Topol’s keynote address will take place on Wednesday, June 17th from 12:00 – 1:30 pm EDT. Voted the #1 Most Influential Physician Executive in the United States in a poll conducted by Modern Healthcare, Topol is also one of Read More >

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Coalition Offers a Remedy for Stagnated Clinical Trials


Promising new clinical trial data offers fresh hope for the families of Alzheimer’s patients.  A new medication seems to be slowing the disease’s progress, limiting the cognitive decline that characterizes this “long goodbye.” Wouldn’t it be wonderful for patients suffering other diseases to have equally encouraging prospects? But many do not. Part of the problem lies with clinical trials.  For a new medication to receive FDA approval, it must undergo comprehensive testing on actual patients.  Read More >

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Webinar Today: Comparative Effectiveness Research


As we continue to see new strides in biopharmaceutical innovation, there is increasing value in having more information on how specific treatments affect patients.  This is the intention behind comparative effectiveness research, which can play a critical role in health care decision-making. Later today, experts will be examining the relationship between comparative effectiveness research and the way health care decisions may be made in the future.  The National Pharmaceutical Council (NPC) will be hosting a Read More >

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New PhRMA Report: A Decade of Innovation in Rare Diseases


Today, the Pharmaceutical Research and Manufacturers of America (PhRMA) released “A Decade of Innovation in Rare Diseases,” which highlights 10 years of progress in understanding rare diseases and drug development resulting in groundbreaking therapies. According to the report, more than 230 new medicines to treat rare or “orphan” diseases were approved by the U.S. Food and Drug Administration (FDA) in the last decade, and there are currently more than 450 orphan drugs in development. The Read More >

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Biotech Could Miss a Multi-Billion Dollar Opportunity in Rare Disease


Drug development is expensive.  Drug development is risky.  Drug development takes a long time. The key to changing this is leveraging the fact that no one is more motivated to eliminate rare disease than those who are directly affected by it. I know this because, as the founder of Give RARE, I have talked to parents of children with Tay Sachs disease who know their children will die within a few years unless something changes.  Read More >

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