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NORD and the Orphan Drug Act Celebrate 35 Years Driving Rare Disease Advocacy, Research, and Innovat...

The National Organization for Rare Disorders (NORD) has been instrumental in influencing public policy, regulatory …

NORD President: Congress must act now to help 15 million sick children

Writing in The Hill, National Organization for Rare Disorders (NORD) President and CEO Peter Saltonstall …

The Washington Post Unfairly Attacks The Orphan Drug Act

The Orphan Drug Act has been a tremendous success and addressed a market failure by …

Orphan Drug Tax Credit is Crucial to Rare Disease R&D

The term “rare disease” may be misleading: to be “rare” a disease must effect fewer …

Complexities of Rare Diseases Take the Spotlight at BIO

Global Genes Founder & CEO Nicole Boice opened the BIO 2015 Orphan & Rare Disease …

Mito What???

Mitochondrial Disease: The Most Common Disease You’ve Probably Never Heard of… About 20 years ago, …

NORD Urges Congress: Don’t Cut Orphan Drug Tax Credit

This week, the National Organization of Rare Disorders (NORD) and more than 70 patient organizations …