Tag Archives: ODTC

How the Orphan Drug Tax Credit Leverages MDA’s Fight against Rare Genetic Diseases

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In the early 1950s, a small group of concerned parents, people with muscular dystrophy and their friends started a volunteer organization, the Muscular Dystrophy Association (MDA), to raise money for research into the causes of rare genetic diseases that mysteriously destroyed muscles and shortened lives. In the decades since — thanks to the support of a caring public and vital corporate partnerships — MDA has become a leading voluntary health agency, funding research in academic Read More >

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NORD Urges Congress: Don’t Cut Orphan Drug Tax Credit

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This week, the National Organization of Rare Disorders (NORD) and more than 70 patient organizations sent a letter to key members of Congress in support of maintaining the Orphan Drug Tax Credit. Representing millions of American men, women and children suffering from rare diseases, the organizations voice strong support for the Orphan Drug Tax Credit (ODTC) and urge Congress to keep this critical tax credit in place as tax reform proposals are developed. According to Read More >

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