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New Study Debunks Myths About Orphan Drug Act and Rare Disease Drug Costs

The Orphan Drug Act has been targeted recently by the insurance industry and its allies …

The Washington Post Unfairly Attacks The Orphan Drug Act

The Orphan Drug Act has been a tremendous success and addressed a market failure by …

Complexities of Rare Diseases Take the Spotlight at BIO

Global Genes Founder & CEO Nicole Boice opened the BIO 2015 Orphan & Rare Disease …

Expanding Access to Orphan Drugs

At present many orphan diseases do not have any licensed treatments, and for those conditions …

FDASIA: A Step Forward for Patients

Earlier this year, Congress passed and President Obama signed the FDA Safety and Innovation Act …

FDA Safety and Innovation Act: A Step Forward for Patients With Rare Diseases

By Peter L. Saltonstall, President and CEO, National Organization for Rare Disorders (NORD) The Food …

2012 Orphan Disease Forum: Addressing Today’s Opportunities and Challenges

If all of the people with rare disease lived in one country, it would be …

When RARE is not so RARE!

By Nicole Boice, Founder/President, RARE Project Did you know that there is a community of …