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Orphan Drug Tax Credit is Crucial to Rare Disease R&D

The term “rare disease” may be misleading: to be “rare” a disease must effect fewer …

Complexities of Rare Diseases Take the Spotlight at BIO

Global Genes Founder & CEO Nicole Boice opened the BIO 2015 Orphan & Rare Disease …

Mito What???

Mitochondrial Disease: The Most Common Disease You’ve Probably Never Heard of… About 20 years ago, …

How the Orphan Drug Tax Credit Leverages MDA’s Fight against Rare Genetic Diseases

In the early 1950s, a small group of concerned parents, people with muscular dystrophy and …

NORD Urges Congress: Don’t Cut Orphan Drug Tax Credit

This week, the National Organization of Rare Disorders (NORD) and more than 70 patient organizations …