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Complexities of Rare Diseases Take the Spotlight at BIO

Global Genes Founder & CEO Nicole Boice opened the BIO 2015 Orphan & Rare Disease …

Mito What???

Mitochondrial Disease: The Most Common Disease You’ve Probably Never Heard of… About 20 years ago, …

Rare Disease Day 2014: Joining Together for Better Care

There are more than 6,000 different rare diseases affecting over 60 million people across Europe …

How the Orphan Drug Tax Credit Leverages MDA’s Fight against Rare Genetic Diseases

In the early 1950s, a small group of concerned parents, people with muscular dystrophy and …

NORD Urges Congress: Don’t Cut Orphan Drug Tax Credit

This week, the National Organization of Rare Disorders (NORD) and more than 70 patient organizations …

The Ethics of the Market Access Debate

At the core of the market access conversation lies the question of value. How much …

Worldwide Orphan Drug Market to Grow to $127 Billion by 2018

The 2013 Orphan Drug Report from Evaluate, which launched today at the 2013 BIO international …