Filter posts

Better Understanding the Patient Voice at BIO 2018

Day Three of Educational Tracks at #BIO2018 included a panel on ‘Best Practices for Working …

Understanding the Patient Voice: Unique Perspectives on Healthcare

To end Day 2 of Education Tracks at the 2018 BIO International Convention, Julie Gerberding, …

Welcome to the 2017 BIO Patient and Health Advocacy Summit!

Patients are at the forefront of everything we do. Each year BIO brings the patient …

BIO Principles Put Patients First

Patient advocacy organizations play an indispensable role in the biopharmaceutical development process: They help scientists …

Orphan Drug Tax Credit is Crucial to Rare Disease R&D

The term “rare disease” may be misleading: to be “rare” a disease must effect fewer …

Wall Street Journal: Patients Deserve Better

In case you missed it, The Wall Street Journal published my Letter to the Editor …

BIO 2015 Kicks Off: Patient-Focused Drug Development Key Theme of Day One

The BIO International Convention kicked off in Philadelphia today with a strong emphasis on patient-focused drug …

United Health To Congress: Let Cancer Patients Eat Gauze (Op-Ed in The Hill)

Jonathan Wilcox’s op-ed in The Hill today highlights the growing challenge of insurance company tactics that …

World Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe

Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and …

Attacks on Venture Philanthropy Miss Mark Badly

In a highly problematic op-ed in today’s New York Times, freelance journalist Llewellyn Hinkes-Jones attacked venture philanthropy …