Tag Archives: patient

Making the Case for Personalized Medicine

Personalized-Medicine

Personalized medicine is the customization of healthcare. Already, a suite of molecular approaches is being used to tailor certain medical decisions, practice and products to the individual patient. For example, melanoma, leukemia and metastatic lung, breast and brain cancers can be routinely “molecularly diagnosed” and treated with medicines that target the specific genetic mutations. These represent a remarkable improvement over trial-and-error medicine. Other diagnostic tests use the patient’s DNA sequence to determine drug-metabolizing capabilities. This Read More >

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21st Century Cures: Accelerating the Discovery-Development-Delivery Cycle

Fred-upton

How can we give patients faster access to innovative treatments and cures? That’s the question the House Energy and Commerce Committee is asking our nation’s foremost medical experts and innovators through white papers, hearings, and roundtables in an initiative we call 21st Century Cures. Our collaboration includes everyone from the National Institutes of Health and the Food and Drug Administration to patients, researchers, health entrepreneurs, and other thought leaders. Through 21st Century Cures, our goal Read More >

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Medicare Part B: Barriers to Cancer Treatment

Davenport-Ennis

The National Patient Advocate Foundation (PAF) has seen a notable rise in calls for assistance from both Medicare beneficiaries and cancer doctors regarding difficulty accessing certain cancer drugs in the physician office setting, where most patients receive their care. As a result, patients are being forced to seek cancer treatment in the hospital setting to access their life-saving cancer medicines; this displacement disrupts their continuum of care, is inconvenient, and is more costly to the Read More >

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National Patient Advocate Foundation: Cancer Patients are Being Left Behind

20070112

Roll Call published a commentary today by Nancy Davenport-Ennis of the National Patient Advocate Foundation on the effects of the sequester on cancer care. The op ed states that these ‘cuts are shown to directly impact patients through higher copayments, longer travel times and increased travel expenses, visits to multiple providers and locations for care and services, and delays seeking treatment even as cancer progresses.’  Despite these facts, some have called for even deeper cuts Read More >

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Bringing Hope to Patients

Jim Greenwood

No-one expected Hope Bartley to survive after she was born three months early. Thanks to extraordinary biotech medicine, she did. Alena Galan, age 14, is one of only a few thousand patients with a rare disease called MPS. Thanks to the hard work of leading biotech scientists and the approval of a new treatment, she now has a chance to lead a normal life. Lori Lober experienced the unthinkable when she was diagnosed with Stage Read More >

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