Tag Archives: patient

BIO Principles Put Patients First

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Patient advocacy organizations play an indispensable role in the biopharmaceutical development process: They help scientists and researchers better understand what it’s like to live with the diseases they’re trying to cure. That’s why BIO and our member companies are deeply committed to meaningful partnerships with patient advocacy organizations as we work to discover new medications to help patients live longer, healthier, more fulfilling lives. Today, there are more than 250 biotechnology health care medications and Read More >

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Orphan Drug Tax Credit is Crucial to Rare Disease R&D

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The term “rare disease” may be misleading: to be “rare” a disease must effect fewer than 200,000 people in the U.S., but there are over 7,000 rare diseases that have been identified. Taken together, that means that nearly 30 million Americans suffer from a rare disease or condition.  While innovative therapies have been developed for a variety of these diseases—including Sickle Cell Anemia, Gaucher Disease, and Huntington Disease—too many patients still lack treatment options. Developing Read More >

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Wall Street Journal: Patients Deserve Better

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In case you missed it, The Wall Street Journal published my Letter to the Editor this morning.  I make the point that the problem isn’t innovative new treatments from America’s biopharma industry but rather the complex web of health-insurance schemes patients must navigate to access needed medicines. Here is the text of the letter: “Innovative treatments and cures have radically transformed how we treat disease—saving and improving lives and providing tremendous benefits to patients and Read More >

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BIO 2015 Kicks Off: Patient-Focused Drug Development Key Theme of Day One

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The BIO International Convention kicked off in Philadelphia today with a strong emphasis on patient-focused drug development as a seismic shift in the way drugs are developed and delivered. The luncheon keynote featured a discussion with News Anchor and Journalist Tom Brokaw interviewed by BIO’s Jim Greenwood, in which Brokaw shared his experience and perspective as a patient. Brokaw recently authored a book about his experiences as a Multiple Myeloma patient – A Lucky Life Interrupted. Read More >

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United Health To Congress: Let Cancer Patients Eat Gauze (Op-Ed in The Hill)

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Jonathan Wilcox’s op-ed in The Hill today highlights the growing challenge of insurance company tactics that contribute to increased costs to the health care system and restricted patient access to life-saving medicines. While UnitedHealth Group just reported increased revenues for first quarter 2015, patients are shouldering the burden with rising copays and restricted coverage, asserts the author. As Wilcox writes, ‘That’s why cancer advocacy organizations are taking action, pressing Congress and state legislatures to cap co-pays on specialty Read More >

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