Tag Archives: patient

BIO Patient & Health Advocacy Summit: The Power of Partnerships

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Last week, the BIO Patient & Health Advocacy Summit powered partnerships in the industry to advance drug discovery by bringing together patient and advocacy groups, government agencies and biotech industry leaders to discuss how to accelerate medical R&D, preserve patient access to appropriate care, leverage data and build collaborations focused on empowering patients. The rallying cry that reverberated throughout the event and over Twitter seemed clear from the beginning and Paul Hastings, Chairman and CEO Read More >

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Patient and Venture Philanthropy Groups Presenting at 2014 BIO Investor Forum

BIO Investor Forum

BIO’s alliance development team works to foster collaboration between the biotech industry and nonprofit disease foundations. In recent years, many nonprofit foundations have become more engaged in the drug development process – whether they have created clinical trial recruitment tools, established a disease registry, or funded emerging biotech companies. Recognizing the value of these initiatives to expedite research and drug development, BIO provides opportunities for venture philanthropies and patient organizations to connect with BIO members Read More >

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Mito What???

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Mitochondrial Disease: The Most Common Disease You’ve Probably Never Heard of… About 20 years ago, mitochondrial disease was virtually unheard of.  Just 10 years ago, it was considered rare. Today, according to NORD, a disease is considered rare when less than 200,000 people are affected.  Mitochondrial disease is not a single disease, but rather an entire umbrella of rare diseases.  For example, Alpers disease and Barth syndrome are very different and rare forms of mitochondrial Read More >

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Making the Case for Personalized Medicine

Personalized-Medicine

Personalized medicine is the customization of healthcare. Already, a suite of molecular approaches is being used to tailor certain medical decisions, practice and products to the individual patient. For example, melanoma, leukemia and metastatic lung, breast and brain cancers can be routinely “molecularly diagnosed” and treated with medicines that target the specific genetic mutations. These represent a remarkable improvement over trial-and-error medicine. Other diagnostic tests use the patient’s DNA sequence to determine drug-metabolizing capabilities. This Read More >

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21st Century Cures: Accelerating the Discovery-Development-Delivery Cycle

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How can we give patients faster access to innovative treatments and cures? That’s the question the House Energy and Commerce Committee is asking our nation’s foremost medical experts and innovators through white papers, hearings, and roundtables in an initiative we call 21st Century Cures. Our collaboration includes everyone from the National Institutes of Health and the Food and Drug Administration to patients, researchers, health entrepreneurs, and other thought leaders. Through 21st Century Cures, our goal Read More >

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