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It Starts with One (Rare) Patient

In 1983, patient advocates – now known as the National Organization for Rare Disease, NORD …

Opportunities for Patient and Health Advocates

Last week, the seventh annual Patient and Health Advocacy Summit brought  hundreds of patient advocates, …

Patient Groups/Industry Address Best Practices to Avoid Conflicts

At a recent panel discussion at BIO’s Patient and Health Advocacy Summit, representatives from biopharmaceutical …

2017 BIO Patient Advocacy Pavilion: Bringing Patient Centricity to the Forefront

The role of patient advocacy organizations in the life cycle of drug development has gone …

2016 BIO Patient and Health Advocacy Summit Comes to a Close

The fifth annual BIO Patient and Health Advocacy Summit concluded on November 4, bringing together …

BIO Principles Put Patients First

Patient advocacy organizations play an indispensable role in the biopharmaceutical development process: They help scientists …

Integrating the Patient Voice: Recap of the 2016 BIO CEO & Investor Conference

The 2016 BIO CEO & Investor Conference isn’t just for biotech companies and the investment …

World Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe

Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and …

Mito What???

Mitochondrial Disease: The Most Common Disease You’ve Probably Never Heard of… About 20 years ago, …

Industry-Disease Foundation Partnerships Thrive on Communication & Transparency

Disease foundations are playing an increasingly important role in advancing research and helping to bring …