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2016 BIO Patient and Health Advocacy Summit Comes to a Close

The fifth annual BIO Patient and Health Advocacy Summit concluded on November 4, bringing together …

BIO Principles Put Patients First

Patient advocacy organizations play an indispensable role in the biopharmaceutical development process: They help scientists …

Integrating the Patient Voice: Recap of the 2016 BIO CEO & Investor Conference

The 2016 BIO CEO & Investor Conference isn’t just for biotech companies and the investment …

World Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe

Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and …

Mito What???

Mitochondrial Disease: The Most Common Disease You’ve Probably Never Heard of… About 20 years ago, …

Industry-Disease Foundation Partnerships Thrive on Communication & Transparency

Disease foundations are playing an increasingly important role in advancing research and helping to bring …

The International Myeloma Foundation Pioneers Myeloma Awareness Month

Years ago, after much frustration over the lack of understanding and awareness of multiple myeloma, …

Rare Disease Day 2014: Joining Together for Better Care

There are more than 6,000 different rare diseases affecting over 60 million people across Europe …

Medicare Part B: Barriers to Cancer Treatment

The National Patient Advocate Foundation (PAF) has seen a notable rise in calls for assistance …

Psoriasis Patients Flock to Social Media for Practical Info

About eight in 10 psoriasis patients who use health care social networks say they do …