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A Patient Advocate Perspective on BIO

As the mother of a 12-year-old son with hypophosphatasia, the BIO International Convention is much …

The Sarcoma Foundation of America, a Patient Advocacy Group for a Rare Cancer

The Sarcoma Foundation of America (SFA) is national cancer research non-profit headquartered in Maryland. ¬†Founded …

Taking on High-Risk Investments to Understand Brains and Solve Epilepsy

30 percent of people living with epilepsy do not have seizure control. Moreover, many can …

2017 BIO Patient Advocacy Pavilion: Bringing Patient Centricity to the Forefront

The role of patient advocacy organizations in the life cycle of drug development has gone …