Tag Archives: patient advocacy

Psoriasis Patients Flock to Social Media for Practical Info

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About eight in 10 psoriasis patients who use health care social networks say they do so primarily to learn how others manage their disease, and get practical tips and advice they couldn’t find elsewhere, according to a survey conducted by the National Psoriasis Foundation, Manhattan Research and Inspire, a company that builds and manages online patient communities. The millions of people with psoriasis, including the one million visitors to TalkPsoriasis in 2012, are not alone Read More >

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Onyx CEO One of 25 Most Influential People in Biopharm Today According to FierceBiotech

Tony Coles

After a stellar year, as evidenced by inclusion in the second annual FierceBiotech “25 Most Influential People in Bipoharma Today,” N. Anthony (Tony) Coles, MD, Chairman & CEO of Onyx Pharmaceuticals sat down with Steve Usdin, Senior Editor of BioCentury for an early morning Fireside Chat at the 15th Annual BIO CEO & Investor Conference. To read more about Onyx’s stellar year and their company milestones, visit here. The biotech retained complete control in the Read More >

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Harder, Better, Faster, Stronger: Takeaways from Partnering For Cures 2012

Drug Manufacturing

The chorus to Kanye West’s 2007 chart-topper Stronger can teach us volumes about speeding drug development. Harder:  Drug development is challenging.  It takes over 10 years and more than $1 billon to bring a therapy through the product pipeline, from the research lab to clinical trials to FDA approval to prescription to patients suffering from the disease. The FDA approved over 30 innovative drugs last year, including more than 10 new treatments for cancer—a good Read More >

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FDASIA: A Step Forward for Patients

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Earlier this year, Congress passed and President Obama signed the FDA Safety and Innovation Act (FDASIA) which included a re-authorization of the Prescription Drug User Fee Act (PDUFA). PDUFA provides essential funding to the FDA by authorizing the agency to charge user fees to companies seeking to have products reviewed. Originally enacted in 1992, it must be reauthorized every 5 years. Sara Radcliffe, executive vice president of health at BIO, moderated a panel of experts and advocates Read More >

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eAdvocacy Summit Brings Together More Than 130 Groups

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BIO’s mission is to champion biotechnology issues by advocating for policies that will enable the realization of breakthrough products to cure disease, feed the hungry, and clean our environment. Fortunately, we are not alone – our many alliance and advocacy partners share our goal. When smart, like-minded people get together, good things tend to happen. That’s why I’m looking forward to tomorrow’s eAdvocacy Summit here in Washington, DC. The Global Healthy Living Foundation (GHLF) and Read More >

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