Tag Archives: patient advocates

Some ABCs of PAGs

Blocks

A lot of people, and especially those who have attended BIO events (such as the BIO CEO & Investor Conference, BIO Investor Forum, and the BIO Business Forum) are familiar with the names Michael J. Fox Foundation, FasterCures, ALS Therapy Development Institute, JDRF, and other non-profit Patient Advocacy Groups, or “PAG’s”. In case you missed them, two blog posts came up from the Michael J. Fox Foundation and FasterCures that we wanted to share. They Read More >

The One-on-One Compass  |  Leave a comment  |  Email This Post
Tags: , , , , , , ,

MJFF’s Innovative, New Funding Program Addresses the Entire Therapeutic Pipeline

FDOPA-Images

To date, the Michael J. Fox Foundation for Parkinson’s Research has funded over $297 million in research, $77 million of which has been awarded to more than 160 unique, industry-led projects. In June 2012, MJFF announced its newest funding mechanism, the Therapeutic Pipeline Program (TPP), which combines MJFF’s previous Therapeutics Development Initiative (TDI), Repositioning Drugs for PD, and Clinical Intervention Awards (CIA) programs into a single, streamlined funding opportunity.  Open to both industry and academic Read More >

Health  |  Leave a comment  |  Email This Post
Tags: , , ,

Psoriasis Awareness Month: Psoriasis isn’t contagious but awareness is!

National Psoriasis Foundation

Each August, the National Psoriasis Foundation (NPF) sponsors Psoriasis Awareness Month, dedicated to raising awareness, educating the public and dispelling myths about the disease. What is psoriasis? Psoriasis isn’t contagious, but awareness is. Learn more at www.psoriasis.org. Photo © National Psoriasis Foundation 2012. Psoriasis is a chronic, noncontagious, genetic autoimmune disease that appears on the skin in red, scaly patches that itch, crack and bleed. It is the most common autoimmune disease in the country, Read More >

Health  |  1 Comment  |  Email This Post
Tags: , ,

Bringing Hope to Patients

Jim Greenwood

No-one expected Hope Bartley to survive after she was born three months early. Thanks to extraordinary biotech medicine, she did. Alena Galan, age 14, is one of only a few thousand patients with a rare disease called MPS. Thanks to the hard work of leading biotech scientists and the approval of a new treatment, she now has a chance to lead a normal life. Lori Lober experienced the unthinkable when she was diagnosed with Stage Read More >

Jim's Corner  |  Leave a comment  |  Email This Post
Tags: , , , , , , ,

From Despair to Hope, a New World of Treatments

Test Tubes

By David Welch, President and Senior Producer, M2 MultiMedia Communications Tonight, Wednesday March 28 at 9:00 EST, a documentary called From Despair to Hope, A New World of Treatments, will be broadcast on WUSA-TV, the CBS affiliate in Washington, D.C.  It is sponsored by the Biotechnology Industry Organization. For me, producing this program was a yet another profound reminder of the contributions of biotechnology companies that are helping millions of patients throughout the world live hopeful Read More >

Health  |  2 Comments  |  Email This Post
Tags: , , , , , , ,