Tag Archives: public policy

How the Orphan Drug Tax Credit Leverages MDA’s Fight against Rare Genetic Diseases

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In the early 1950s, a small group of concerned parents, people with muscular dystrophy and their friends started a volunteer organization, the Muscular Dystrophy Association (MDA), to raise money for research into the causes of rare genetic diseases that mysteriously destroyed muscles and shortened lives. In the decades since — thanks to the support of a caring public and vital corporate partnerships — MDA has become a leading voluntary health agency, funding research in academic Read More >

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TPP and Innovation in the Bioeconomy: The Need for 12 Years of Data Protection

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A few weeks ago, BIO submitted a letter and white paper (PDF) to the U.S. Trade Representative outlining recommendations for policies to pursue with TPP negotiating partners to ensure intellectual property protection for innovative biologic products. Standards that enable biotechnology companies to protect and leverage their intellectual property are of critical importance to companies seeking breakthrough treatments and cures for patients in need worldwide. Implementing standards of protection that effectively protect innovation for biological products within the TPP region Read More >

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NORD Urges Congress: Don’t Cut Orphan Drug Tax Credit

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This week, the National Organization of Rare Disorders (NORD) and more than 70 patient organizations sent a letter to key members of Congress in support of maintaining the Orphan Drug Tax Credit. Representing millions of American men, women and children suffering from rare diseases, the organizations voice strong support for the Orphan Drug Tax Credit (ODTC) and urge Congress to keep this critical tax credit in place as tax reform proposals are developed. According to Read More >

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The Hill: Innovation-focused tax reform for U.S. global competitiveness

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The Hill Blog published an op-ed by Geoff Davis on ‘Innovation-focused tax reform for U.S. global competitiveness.’ Davis, a former member of the House Ways & Means Committee, which has responsibility for writing our nation’s tax laws,  urges policymakers to support innovative, research-intensive businesses by encouraging private investment as they move towards tax reform. As he states, “If the U.S. is to remain competitive in the global economy, we need to make sure there are policies Read More >

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Unraveling the Mystery of Alzheimer’s Disease

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Preeminent researchers from around the world gathered recently to tackle the science behind one of medicine’s toughest problems – Alzheimer’s – and elevating the disease as a top global priority. The Global CEO Initiative on Alzheimer’s Disease (CEOi) – a coalition of corporations from the fields of biotechnology, pharmaceuticals, diagnostics, finance, and healthcare – hosted a dinner during the Alzheimer’s Association International Convention (AAIC) in Boston. The CEOi had already taken strides to achieve this Read More >

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