Tag Archives: rare disease project

International Rare Disease Day: Join the Movement

Nicole Boice

By Nicole Boice, President and Founder, RARE Project Being diagnosed with any illness can be overwhelming. Imagine what it’s like, though, to be diagnosed with a disease that you’ve never heard of – maybe even one that your doctor has never seen before. Millions of people start this diagnostic odyssey on their own, with little or no support, no real direction, with feelings of isolation and fear. That’s exactly the situation in which millions of Read More >

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When RARE is not so RARE!

Nicole Boice

By Nicole Boice, Founder/President, RARE Project Did you know that there is a community of sick and disabled women, children, and men that is so large that it outnumbers all of those with cancer and AIDS combined worldwide?  Scary to think about? Can you guess what it is? Staggering Statistics The Rare Disease Community is made up of over 7,000 known rare diseases and over 350 million people worldwide.  Here in the US, over 35 Read More >

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