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Senator Roberts is a Champion of Biotechnology Innovation

Last night, U.S. Senator Pat Roberts (R-Kan.) accepted BIO’s Lifetime Achievement Award, which recognized his …

Two New Infographics Illustrate the Success of the Orphan Drug Act

In recognition of Rare Disease Day, BIO’s Jim Greenwood shared commentary on LinkedIn celebrating the …

BIO Illustrates the Success of the Orphan Drug Act

The numbers might surprise you. Approximately 7,000 rare diseases are known to exist, and approximately …

NORD and the Orphan Drug Act Celebrate 35 Years Driving Rare Disease Advocacy, Research, and Innovat...

The National Organization for Rare Disorders (NORD) has been instrumental in influencing public policy, regulatory …

New Study Debunks Myths About Orphan Drug Act and Rare Disease Drug Costs

The Orphan Drug Act has been targeted recently by the insurance industry and its allies …

The Washington Post Unfairly Attacks The Orphan Drug Act

The Orphan Drug Act has been a tremendous success and addressed a market failure by …

Complexities of Rare Diseases Take the Spotlight at BIO

Global Genes Founder & CEO Nicole Boice opened the BIO 2015 Orphan & Rare Disease …

Expanding Access to Orphan Drugs

At present many orphan diseases do not have any licensed treatments, and for those conditions …

FDASIA: A Step Forward for Patients

Earlier this year, Congress passed and President Obama signed the FDA Safety and Innovation Act …

FDA Safety and Innovation Act: A Step Forward for Patients With Rare Diseases

By Peter L. Saltonstall, President and CEO, National Organization for Rare Disorders (NORD) The Food …